Healing Hearts and Minds: A Holistic Approach to Coping Well with Congenital Heart Disease

Summary

Congenital Heart Disease (CHD) is the most commonly diagnosed birth abnormality in the US. With great advances in surgery and medicine, however, survival rates have improved by 75% since the 1940s. With better medical care, babies born today with CHD have a good chance of surviving, but throughout their entire lives they can face surgeries, invasive treatments, lifelong monitoring, frequent medical check-ups, and significant limitations on physical activity, in addition to poor public awareness. Much attention has rightly been focused on providing their parents and caretakers with resources and information.

Little attention, however, has been paid to the psychosocial impacts on these individuals, especially as they grow, mature, and become adults living with a serious, chronic medical condition. Prevalence rates for anxiety, depression, and PTSD are significantly higher (2-3x in some cases) for people living with CHD than the general adult population. Liza Morton and Tracy Livecchi are both mental health professionals who have developed a specialty in working with clients who have chronic medical conditions, and they are both themselves living with CHD. While their powerful personal stories are woven into the narrative, the book is focused on providing evidence-based coping and self-care skills for adults living with CHD.